Radiation therapy for breast cancer is using higher doses of radiation than typically used for x-rays to destroy any remaining cancer cells that might not have been taken out with surgery or destroyed by chemotherapy and/or the targeted drug therapies. It works by damaging the cancer cells over and over again. You have the treatment daily so that the cancer cells do not have the time to repair between treatments. Eventually those cancer cells will disappear while normal cells will continue to regenerate and recover.
You will meet with your Radiation Oncologist to go over your history and treatment 2 to 3 weeks before treatment starts. Usually you are recovering from chemotherapy for about a month before radiation treatment begins. You will have a Computer Tomography or CT Simulation Scan scheduled, where they position you for your radiation treatments and record the coordinates. You will most likely get tiny dot tattoos as reference points that will be used at each radiation session.
The first radiation treatment will take a while, about an hour or more (they will most likely take x-rays), but after that the daily radiation treatment will only be a few minutes long and you will be in and out of the hospital within 30 minutes (unless there are delays in your appointment). In the first treatment session, the technologists may use a marker or iodine to draw lines (marks) on your body. They will ask you not to wash them off and they will redraw them if they start to fade.
Throughout your treatment, they may need to do further scans and x-rays to be sure the positioning for the radiation has not changed due to swelling of the breast or other factors that could create coordinate changes. This will just add a bit of time (like your first treatment day) to your daily treatment.
Also, if you are getting a “boost” treatment, which is an extra few days or a week of treatment added to the end of the initial radiation schedule (which focuses the radiation on the surgical incision spot only), you will have another CT Simulation Scan to set up those coordinates and positioning before they start that phase of treatment. Age determines if this boost of radiation is done or not, and if you are close to the age recommendation, they may ask if you want it anyway. I was told that it can shave a certain percentage off from the cancer reoccurring – for me they told me it was up to 4%. They explained the additional radiation risk was mostly cosmetic – scarring and hardening of skin.
If in the original scans pre-radiation, or even pre-chemotherapy treatment, they had found some abnormalities like nodules or cysts, say for example, on the lungs, they may decide to periodically schedule a scan to make sure they are not growing or changing.
You may have blood tests scheduled by your Radiation Oncologist as well. For example, renal blood work to check your kidney function. Every patient is unique with unique needs and requirements.
Finally, you will also be scheduled, probably once a week, to check in with your Radiation Oncologist to see how you are feeling and how the treatment is going. They will also inform you of any scan or test results.
You will have a lot of appointments and add-on appointments as the treatments continue. It can be overwhelming, so be patient and take it in stride. Go over your appointments each day to keep them all organized. Write your questions and concerns down as you think of them for each appointment so that you do not forget them (chemo brain!), or email yourself the lists so that you can refer to them on your mobile/cell phone if you have one, which is what I did.
After treatment, apply whatever ointment, lotion, cream or balm you decided to use (see TIP in the right column). Never use the ointment, lotion, cream or balm BEFORE treatment unless instructed otherwise. Follow your doctor’s advice. (Be sure to clean off any thickly layered cream or lotion even if applied the night before. But be gentle when cleaning the radiation area.)
Sometimes, radiation therapy is all you need. If I had not been diagnosed with the aggressive form of cancer (HER positive; aggressive), I would have only been given radiation therapy. I was in Stage 1, with In Situ tumors but unfortunately it was the aggressive form of cancer, therefore I needed chemotherapy as well as the radiation therapy. Some patients receive the radiation before or during chemotherapy. Every person will have unique requirements and schedules. Your oncologist knows what is best for you.
Radiation therapy can also be used before surgery to shrink a tumor first. Again, it depends on your unique situation.
Select Here is a great explanation of the CT Simulation process.
Listed below are (or you can also jump to the link):
Ten Key Points About Radiation Therapy
- Radiation is a local, targeted therapy designed to kill cancer cells that may still exist after surgery. Radiation is given to the area where the cancer started or to another part of the body to which the cancer spread.
- The actual delivery of radiation treatment is painless. But the radiation itself may cause some discomfort over time.
- External radiation treatment, the most common kind of radiation therapy, does not make you radioactive.
- Treatment is usually given 5 days a week for up to 7 weeks. Sometimes radiation may be given twice a day for 1 week.
- Since the daily appointments usually take about 30 minutes, you’ll most likely be able to follow most of your normal routine during treatment.
- Radiation will not make you lose your hair, unless radiation is given to your head.
- In the area where you are receiving radiation, your skin can turn pink, red, or tan, and may be sensitive and irritated. Creams and other medicines can soothe these symptoms.
- During your treatment course, you may feel tired. This feeling can last for a few weeks — even months — after treatment ends.
- Most radiation side effects are temporary.
- Radiation therapy can significantly decrease the risk of cancer returning after surgery.(1)
You will be asked to not wear a bra during your radiation therapy. If this is a problem, talk to your doctor. There may be soft bra alternatives if need be.
For a comprehensive booklet for radiation therapy (or Radiotherapy) from the NIH National Cancer Institute, select here. It is called Radiation Therapy and You: Support for People with Cancer (2) It included what to eat to keep your energy level up as well, but you can also refer to the Eating Hints: Before, during, and after Cancer Treatment for more information.(3)
The side effects of radiation can be:
- Fatigue (which can grow over time)
- Hair loss (in the area being treated)
- Skin changes in the treated area similar to a sunburn (redness, skin peeling, darkening of the skin)
- Swelling (Edema)
- Tenderness
Long-term and Late Effects of Radiation Therapy
The side effects often get stronger throughout your treatment. Some side effects will continue past your treatment sessions. They could take weeks, months, or even years to dissipate or disappear completely. Some can be permanent. These are called long-term effects. Some effects that can appear a long time after treatment finishes are called late effects. Examples of late effects associated with chest radiation therapy could be heart problems or lung problems. For radiation in general, a late effect can be a second cancer.
As with chemotherapy, exercise is important. Walking is the best exercise for you. With whatever exercise you choose, take it slow and stop if you are feeling too fatigued. Always listen to your body.
I completed my radiation treatment with minimal skin irritation in April 2019. I lathered on the Miaderm multiple times a day. I met weekly with my Radiation Oncologist for a few minutes each time. There wasn’t much to discuss. She just wanted to check the area and ask me of any side effects. She requested another CT scan to check something on the lung directly under the area that was getting the radiation treatment. It was a spot on my first scan before chemotherapy started. She was just checking to be sure it had not grown, or if it was something other than what they first thought (a normal cyst). Results were good. No issues so far. I was scheduled a follow up scan in 6 months time and a blood test in 7 months time (kidney check).
I did have the Computer Tomography or CT Simulation Scan as described above, where they set up the coordinates and positioning for the radiation. I had 4 tattoos applied at this time. Tiny dot tattoos that will be used as reference points. One above my belly button, one to each breast side, and one in the center, between my breasts. They used a black marker on me that they said I could clean off afterwards. They did a few scans. It was painless, other than the needle pricks for the tattoos which I hardly felt.
Periodically they will do further x-rays to be sure the positioning and coordinates are still correct for the target of radiation (for me it was weekly). The breast being treated may swell over the course of treatment. They will record the new coordinates and reapply any markings on your body if need be. This lengthens your treatment for that day, but then you go back to the short visits each day thereafter.
I also had another CT Simulation Scan for the boost phase, which lasted only 4 days for me at the tail end of the treatment. They taped a wire to the incision line and scanned and took photographs. The radiation treatment was concentrated only at the incision area for the last 4 days of treatment. This was set up in advance as it got closer to the boost treatment. The information was fed into the system for when the boost phase started.
As I stated above, I had minimal damage to the exterior where the radiation was targeted. My skin only turned pink, sometimes very bright directly after the treatment, but then it subsided within a day or two after keeping up with the cream. I really lathered up the lotion, using three tubes of the Miaderm up, saving more for the weeks that followed after treatment. One woman I met at the hospital was using gauze and cream to keep the area fully moisturized at all times. Her skin was quite burned and red after four weeks of treatment with one more to go. She said she had failed to put enough on at first, and didn’t realize how important it was.
My radiation therapy lasted for 4 weeks. This is decided by your radiation oncologist and supporting breast cancer team. Originally mine was to be set for 3 weeks, but my doctor asked if I wanted an extra 4 days (a boost) because they were changing the age requirements to add almost another full week, and I fell in close to that new age range requirement. She explained that the extra days have shown to reduce the recurrence by another 4%. Mine was an aggressive cancer and I hoped that the boost might help reduce the recurrence rate. I thought that it would be worth the 4 more days of radiation, so I agreed. The additional risk will be more hardening and scarring with those extra doses of radiation, because it would be concentrated on the scar area where the surgical incision was. Cosmetic, I was told, but remember the radiation can do damage to what lays underneath where the treatment is focused. Ribs can be weakened, lungs and heart. Discuss your particular situation with your doctors. Get second opinions if you are not sure.
As I write this, I am a week past my last radiation treatment. They say you get worse before you get better. For me, this was true. I peeled much more, my fatigue made me fall asleep throughout the day and made it hard for me to get up in the morning. And my lungs feel like they are overdoing it as I climb stairs or even take deep breaths in and out. A tight chest teetering on pain, so I am not overdoing it.
I will have another CT scan to check my lower abdomen and chest area later in the year, as well as bloodwork to be sure certain organs were not damaged during radiation.
The patches of lost hair are finally beginning to grow in I am happy to say. Especially my eyebrows, which can look a little funny when in transition. I hope to not wear a wig in a month or so. But, not yet.
Now that the radiation treatment is over, I have met with my chemo oncologist again. All of my blood work looks normal with the exception of my White Blood Cell count. It is close to normal but still below. Hopefully the next test in the weeks to come will show all normal stats. I was prescribed my aromatase inhibitor (hormonal treatment).
My Herceptin infusions continue for the year.
TIP: There are a lot of healing ointments, lotions, creams and balms to use on your breast, chest, neck, or other surrounding areas affected by the radiation treatment. Miaderm, which claims to be specifically formulated for radiation therapy was suggested to me by a friend who went through breast radiation therapy. She said it worked great. If you live outside the U.S., you can order it online at Amazon.com for the lowest prices, or from their website. Other products suggested to me via my Radiation Oncologist were Aveeno, Lipikar and Glaxol Base. (select each product to learn more about them). There are no doubt other products out there that work great. Choose the one that works best for you. Ointments to apply as suggested by breastcancer.org are: A&D, Eucerin, Aquaphor, or Biafene.
TIP: WARNING! You will be applying the healing ointments, lotions, creams or balms approximately 4 (four) times a day to the area being treated. You need to really lay on a thick layer and do it often. If, like me, they draw with a permanent marker and/or iodine directly onto your skin to help with your positioning for each day’s treatment, you will need to keep two things in mind. One, that they reapply the markings if it begins to fade, so you will need to take care not to wash it off the best you can. And, Two, when applying the lotion, cream, balm or ointment you are supposed to avoid the marks with the cream. It is virtually impossible to avoid the lotions or whatever you are using from affecting the marks. And beware, the ink will get onto your clothes as it is moistened by the lotion or showering! Plan to buy black or cheap (throw away) type undergarments like black tank tops or t-shirts. You will be smearing on the ointment, lotion, balm or cream for relief and healing of the skin. It will no doubt moisten the marks. This will transfer to your clothing. Even though I had my radiation treatment in the winter, I suspect the ink will also transfer to your clothing in hotter and more humid climates when working out, or doing outdoor activities. Be aware of this.
TIP: DO NOT APPLY ANY TOPICAL LOTION, BALM, OINTMENT OR CREAM TO THE AREA BEING TREATING AT LEAST 4 (FOUR) HOURS BEFORE RADIATION TREATMENT. DO NOT USE DEODORANT UNDER THE ARM NEAR THE BREAST BEING TREATED, EITHER. Talk with your radiation therapy team to be sure of what their particular rules or suggestions are.
TIP: You might want to carry some deodorant with you on the day of radiation treatment, especially if you are going to work or other activities or errands before going home. You can apply deodorant to the underarm of the side not being treated before your appointment, but afterwards, you can apply it to the other side. Talk with your radiation therapy team to be sure of what their particular rules or suggestions are.
TIP: Depending on where the radiation treatment is, and the extent of it, you may lose hair on and around the area and possibly under your arms. Don’t be alarmed. A friend of mine told me hers never grew back in her armpits and she was happy about that. No more shaving!
TIP: Out of Town Lodging. In the United States “Facing cancer is hard. Having to travel out of town for treatment can make it even harder. Yet the American Cancer Society has a place where cancer patients and their caregivers can find help and hope when home is far away – an American Cancer Society Hope Lodge.”
For Canada, check with your hospital or cancer center for lodging information for the city where you are being treated or contact the Canadian Cancer Society for help. Examples below.
If being treated in Toronto, “Princess Margaret Cancer Centre Lodge is a unique place for out-of-town cancer patients who come to Toronto for treatment. It provides a “home away from home” for short-term stays.”
If being treated in Montreal, “The Jacques-Cantin Lodge offers accommodations in a calm and peaceful environment to autonomous persons who receive cancer treatments in Montreal. Special attention is paid to the needs of residents. The objective is to provide all the amenities necessary, with the warmth and comfort of home.”
In British Columbia, the multiple Lodges are listed here.
TIP: New research. Can Oxygen “Microbubbles” Make Radiation Therapy More Effective? Click to find out.
Helpful Links
https://www.cancer.org/cancer/breast-cancer/treatment/radiation-for-breast-cancer.html
https://www.cancer.gov/about-cancer/treatment/types/radiation-therapy
http://www.cancer.ca/en/cancer-information/cancer-type/breast/treatment/radiation-therapy/?region=qc
https://www.mayoclinic.org/diseases-conditions/cancer/multimedia/radiation-therapy/sls-20076358
https://www.cancer.gov/news-events/cancer-currents-blog/2018/breast-cancer-radiation-therapy-whole-partial-recurrence
http://www.cancer.ca/en/cancer-information/cancer-type/breast/treatment/radiation-therapy/?region=on
(1) https://www.breastcancer.org/treatment/radiation/10_points
(2) https://www.cancer.gov/publications/patient-education/radiationttherapy.pdf
(3) https://www.cancer.gov/publications/patient-education/eating-hints
(4) https://www.cancer.gov/about-cancer/treatment/types/radiation-therapy/side-effects
CT Simulation
https://www.breastcancer.org/treatment/radiation/types/ext/expect/simulation
https://www.hopkinsmedicine.org/sibley-memorial-hospital/patient-care/specialty/cancer/treatment/radiation-oncology/radiation-therapy-simulation.html